GastroKids

Liver Disease

Resources

Alagille Syndrome Alliance

10500 SW Starr Drive

Tualatin, OR 97062

Telephone: 503-885-0455

Alpha 1 Association

2937 SW 27 Avenue, Suite 106

Miami, FL 33133

Toll Free Number: 800-521-3025

Fax: 305-648-0089

Alpha Net

2937 SW 27th Ave.

Suite 305

Coconut Grove, FL 33133

Toll Free Number: 800-577-2638

Alpha One Foundation 

2937 SW 27th Avenue

Suite 302

Miami, Florida 33133

Toll Free Number: 877-2-CURE-A1

Fax: 305-567-1317

Alpha-1 Research Registry

c/o Medical University of South Carolina

Division of Pulmonary Critical Care, Allergy and Sleep Medicine

96 Jonathan Lucas St. STE 812-CSB

MSC 630

Charleston, SC 29425-6300

Toll Free Number: 877-886-2383

Fax: 843-792-0297

American Association for the Study of Liver Diseases

1001 North Fairfax, Suite 400

Alexandria, VA 22314

Telephone: 703-299-9766

Fax: 703-299-9622

American Liver Foundation

39 Broadway, Suite 2700

New York, NY 10006

Toll Free Helpline: 800-GO-LIVER (465-4837)

Telephone: 212-668-1000

Fax: 212-483-8179

American Porphyria Foundation 

4900 Woodway, Suite 780

Houston, TX 77056-1837

Toll Free Number: 1-866-APF-3635

Fax: 713-840-9552

Canadian Alpha-1 Antitrypsin Deficiency Registry

Toronto Western Hospital

399 Bathurst Street, 7th Floor, East Wing

Toronto, Ontario M5T 2S8 Canada

Toll Free Number: 1-800-352-8186

Fax: 416-603-5020

Canadian Association for the Study of the Liver 

CASL Secretariat

c/o BUKSA Strategic Conference Services

Suite 307, 10328 81 Avenue

Edmonton, Alberta T6E 1X2 Canada

Telephone: 780-436-0983 ext. 233

Fax: 780-437-5984

Canadian Liver Foundation 

National Office:

2235 Sheppard Avenue East, Suite 1500

Toronto, ON M2J 5B5 Canada

Toll Free Number: 1-800-563-5483

Fax: 416-491-4952

CLASS (Children’s Liver Association for Support Services)

25379 Wayne Mills Place, Suite 143

Valencia, CA 91355

Toll Free Number: 1-877-679-8256

Children's Liver Disease Research and Education Network

Hepatitis B Foundation

3805 Old Easton Road

Doylestown, PA 18902

Telephone: 215-489-4900

Fax: 215-489-4313

Hepatitis C Society of Canada 

PO Box 33544

50 Dundurn Street South

Hamilton, ON L8P 4X4 Canada

Toll Free Number: 1-800-652-HepC (4372)

Fax: 905-24-0224

Hepatitis International Foundation

504 Blick Drive

Silver Spring, MD 20904-2901

Toll Free Number: 800-891-0707

Iron Overload Diseases Association 

525 Mayflower Road

West Palm Beach, FL 33405 

Telephone: 561-586-8246

PKIDs-Parents of Kids with Infectious Diseases

PO Box 5666

Vancouver, WA 98668

Toll Free Number: 877-55-PKIDS

Fax: 360-695-6941

Scientific Registry of Transplant Recipients 

315 W. Huron St., Suite 360

Ann Arbor, MI 48103

Toll Free Number: 1-800-830-9664

Fax: 734-665-2103

TransWeb: Transplantation and Donation 

Transplant Center, University of Michigan

3868 Taubman Center

1500 E. Medical Center Drive, SPC 5391

Ann Arbor, MI 48109-5391

Telephone: 734-764-4141

United Network for Organ Sharing 

PO Box 2484

Richmond, Virginia 23218

Patient/Public Information: 888-894-6361

Wilson’s Disease Association 

5572 North Diversey Blvd.

Milwaukee, WI 53217

Toll Free Number: 888-961-0533